Friday, September 23, 2011

Jadalyn in and Out of CHLA - January 5, 2005

Yesterday Jadalyn's feeding pump started beeping at us at 4 in the morning. We
tried to flush some water through her J-tube and it would not work at all. It was
blocked. That is the tube that goes into her intestines and her food goes through it.
So we tried to put food into her G-Tube (it goes directly into her stomach) and she
would start throwing up. So we tried to give her tiny amounts of pedialyte through
her G-Tube to keep her hydrated but it wasn't working out. We started calling Children's
Hospital and her Gastroenterologist as soon as their offices opened and by 11:30 we
got our answer, we had to take Jadalyn in to Children's Hospital and have her G-J tube
replaced. This had to be done as an outpatient surgery in Radiology. The only good
thing was that she did have to be sedated or "go under" for the procedure AND her
Daddy was able to stay in the room with her. He assisted by keeping her arms raised
during the procedure. They have to do it in radiology to make sure that the tube is
going directly into her Jejunum (part of her intestines). Everything went well and they
were done within a half hour. I a was nervous wreck, waiting and hoping for the best.
Luckily Jadalyn's Nana was there with us to lend emotional support. Thank you once
again Nana! We were able to leave the hospital right after the procedure. Jadalyn was
pretty uncomfortable and whining and crying. She did throw up on the way home and
had trouble breathing but once we got her home and settled she was fine and has not
thrown up since. Thank God! So she is home and we are praying and keeping our fingers
crossed that the tube was the only problem and she will be home to stay.
Love,
Liz, George and Baby Jadalyn

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