hoping that would help. But throughout the night we had to keep turning her feeding
pump off and on. By morning we knew we had to bring her in to CHLA. We gave her
tiny bits of Pedialyte through her G-J Tube until she started to try to throw up and
turn blue (twice) in the E.R. We were there from about 11am to 12pm. Then they
transferred us to the 5th Floor. Usually we go to the 6th Floor but they were
completely full. They finally got an I.V. started at about 12:30 (in the evening)
after about eight tries. That was traumatic. She was on I.V. fluid only until yesterday afternoon. Then they started giving her a small amount of Pedialyte in addition to the I.V. They will slowly
increase the Pedialyte and wean her off of the I.V. fluid. They have also increased
all of her dose amounts for her Reflux Medication because we all believe that is what
is causing this problem. Also she was very backed up (they did a x-ray of her intestines -
along with the usual CT Scan and tapping of her shunt (all Neurological tests were good and
her ventricles have actually become smaller leaving more room for brain growth!!!! Yeah!!!)
The doctors and us would like to avoid the Nissen Surgery (where they wrap part of the stomach around the esophagus so that no stomach secretions can come back up into Jadalyn's throat/mouth - causing her to turn blue and not be being able to breath) So now it is just a wait and see situation. Now that she is not turning blue and feeling nauseas she is happy go lucky and was up most of the day yesterday. We turned in around 10pm. I will
send another email later in the week. Hopefully we will be home by then! :)
Love to all,
Liz, George and Baby Jadalyn (she is now 19.95 pounds as of Saturday!!!!)
No comments:
Post a Comment